Walk to d’Feet Motor Neurone Disease is back!
Sunday May 23 come along to Bulli Surf Club and show people living with Motor Neurone Disease that they are not alone in this fight.
Bring your family, bring your friends, the 5km walk is wheelchair, pram and dog on lead friendly.
Help us Walk to d’Feet Motor Neurone Disease.
For more information or to register click HERE!
Please note, registrations must be completed online and won't be available in person on the day.
Will You Walk to d’Feet MND?
Have you ever stopped to think what your life would be like if you could no longer walk? No longer move your arms to hug a loved one? Or even no longer talk?
Unfortunately, this is the reality for hundreds of Australians right now who have been diagnosed with motor neurone disease (MND), and there is currently no cure.
But by joining Walk to d’Feet MND Illawarra, you can support people living with MND.
Walk to d’Feet MND will be coming to Bulli Surf Club on May 23, and is a 5km charity walk aiming to show support for those living with MND. Being wheelchair and stroller friendly, it enables people of all abilities, including those with MND, to have a fun day out with friends and family.
You can register for Walk to d’Feet MND Illawarra and order your Walk Tshirt at https://illawarra.walktodfeet.org.au/
Registration for adults is $25, $10 for children, and those with MND can attend the event free of charge.
By attending the event you can raise awareness about the uncommon but devastating disease, and much needed funds so MND NSW can assist those living with the condition.
“The support we’ve had from the community is inspiring,” said Graham Opie, CEO, MND NSW.
“We’ve raised almost $27,000 so far from our Walk to d’Feet MND events this year, a fantastic result for individuals and families afflicted by motor neurone disease, and a big help for us to continue providing support, and to supply equipment costing over $700,000 annually. We couldn’t be more thankful to those giving up their time to help us in this important cause,” he said.
“The cause of MND is not known and at present there is no cure,” said Mr Opie “However, with support through events such as these, we can make a difference in the lives of people who have MND, and help to one day find a cure.”
MND NSW provides support, equipment and information for people with motor neurone disease and their families, including locals like Illawarra Health and Medical Research (IHMRI) researcher Justin Yerbury.
Justin was a professional basketballer, playing for the Illawarra Hawks. However in the late 1990s, members of his family were diagnosed with MND, and he went back to university to become a molecular biologist, ready to research more effective treatments for this devastating disease.
“I embarked upon a career in research because there was not enough known about what causes MND and how it works. We needed to know more to be able to design effective drugs,” Professor Yerbury said.
He has now been researching the disease for over a decade, primarily investigating protein misfolding and presence of proteins contributing to the disease, and has presented his findings at conferences locally and internationally. Unfortunately Justin too was later diagnosed with the familial form of ALS, a type of MND, and although he can no longer move or speak, he continues to perform his research into motor neurone disease.
His colleagues will be attending Walk to d’Feet MND Illawarra, ready to discuss their research and how important it is for understanding MND and hopefully one day providing a cure. They will have a marquee at the event, so pop by to have a chat with them, and learn more about MND.
“Events like this are so important to MND researchers because most of the funds that go to MND research come from donations and fundraising. It is only by working together that we will beat this thing,” Professor Yerbury said.